28 July, 2017
WHMP: 28 July 2017
Today is a much earlier in the day entry that I normally do but in all honesty I can’t see myself have anything else to report. Not much happens in this place after 6pm.
Still in hospital, still have no answers, still don’t know when I am getting out and still in a decent amount of pain.
Have confirmed my MRCP came back clear means that Percy is in pristine condition and whatever is going on is not directly related to my sleeve. My organs are also clear so no stones in any of my organs and no inflammation in my pancreas so that counts out any kidney, bile duct or liver stones and pancreatitis.
They referred me through to urology for an assessment of my bladder and kidneys due to some abnormal urine. I have also got the all clear from urology so this means no severe UTI or a blood clot in my bladder as was also suspected.
The urologist will now refer me back to the surgical team who is going to provide them with a consideration that I may have Superior Mesenteric Artery Syndrome (SMA Syndrome). He explained to me that it’s when a muscle to your intestines shifts and leaves the opening at a very acute angle which can cause the pain, head spins, episodes of chronic contraction like pains, nausea, messing with my heart rate and just basically feeling crappy! This can be attributed to my huge weight loss in a short amount of time. This isn’t a diagnosis but just his thoughts to refer back to the surgical team. I will have to wait to find out at my next surgical visit hopefully tomorrow but may not be until Monday now the weekend is here.
The constant pain is still there and I have had 8 episodes of chronic pain throughout the day. The constant pain is being managed with fentanyl.
On the plus side the urologist has lifted my fasting requirement and my IV had been removed. I am now able to rejoin the world of eating and drinking with Jamie bringing me a ‘real’ coffee when he came in to visit.
I also had another NSV today with the nurses with them being able to use a standard person cuff on the blood pressure machine rather than needing the larger cuff.
How is my mind? Still not great, still just want answers and want to get home but I am slightly relieved that all the super nasties have been eliminated and over the moon that Percy is looking pristine…….now the wait continues to find out a definitive answer of what is actually happening!
I am so very overwhelmed with the stream of messages, phone calls and visits of concern and checking in on how I am going!
It’s heart warming to know so many people care! It’s when the chips are down that the people who matter step up and I am so truly honoured to have so many people by my side! 😍😍